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ocinny414

I'M GOING TO FIGHT THIS FIGHT TO THE END. I WILL SURVIVE!!!!!!!!
May 25

WOW Life happens

I didn't realize how long it has been since I've blogged.  I've had alot of things going on.
The latest news is that the Avistan, Carboplatin, Gemzar is not working anymore.  Seems like treatments work for the first 2 or 3 cycles then stop.  I'm glad my Oncologist does CT scans after every 2 cycles.  
I will be doing a consultation at KU Med with one of the oncologists there.  My Onc. at Topeka recomended this.  If I decide to go with the KU med treatment I would be able to do my treatments at Topeka so that would save on some gas.
The other thing the CT scan showed was something with my gall bladder.  I had an ultrasound of my gallbladder and everthing else in my stomach.  It showed gall stones.  When I rolled on my side while he was doing the scan I could actually see the stones moving.  Anyway since I was between chemos they scheduled me for surgery Thursday.  I'm glad I had the ultrasound because i wouldnt have know why I was in so much pain.  I'm not a whiner but by Saturday night I couldn't hardly stand it.  Got in touch with the surgeon and he said take the dilaudid that I have and if it is really bad go ahead and take the lortab.  I ended up having the surgery on Tuesday instead of Thursday.  They were able to do it laperscopicaly so I have 3 spots on my belly.  The spot on my right side has been really bothering me today.  I go back for my followup appointment on Tuesday so I'll try and get back on here and update what they say.
 
My appointment in Kansas City is on Thursday.  I'll try and update in a more timely manner what is going on.
Ok time to get off here.
Cindy
February 25

Still Low

Did bloodwork again today.
Nurse called me and my platelets are at 23,000 still low.  I have to go back Wednesday and get them checked again.  If they are still low chemo will be postponed till next week.  I'm praying they are back up where they need to be so I don't have to delay things.
Man I wish this weather would decide what it is going to do.  It was about 50 when I left town at 10:30 and when I got back into town at 3 it was down to 40ish. Now it looks like its snowing or something and the wind is blowing.  I'm ready for summer or at least spring weather.  Give me some warmth and sunshine. 
Ok well will update after bloodwork on Wednesday.
Cindy
February 22

UGH another pothole in the road

I got a call late morning from my oncs nurse.  My platelets were down to 11,000 they want them to be at least 12,000.  I had to go in for another CBC bloodwork.  She told me if they were not back up then I'd have to go to the hospital for a platelet transfusion.  Well they were only 5,000 so off we went to the hospital.  Glad its only just around the corner from the cancer center.  Was instructed to be careful and not fall or bump into anything etc on my way there.  Took them about 3 hours to get it all ready.  OH BOY sitting in a hospital bed for that long was not fun. 

They did bloodwork yesterday, then today at the cancer center, again when I got to the hospital and then again before I left.  Because my platelets were so low I now have 4 bruises on my arm from all the needle sticks.  I also got a shot of procrit (SP) in my abdomanal area and have a bruise from that.  They accessed my port for the transfusion and I have a bruise from the tape and also the spot where they put the needle in is a little swollen and will probably be bruised as well.  LOL I look like i've been in a battle.

Was joking with the guy who did the blood draws and told him I looked like a druggie.  He made a great funny and said real junkies have port a caths.  LOL.  Poor guy had to put up with me like 3 or 4 times today for different reasons.  I think I made his day fun.  I'm still trying to keep my sense of humor through all this.  It is hard at times but I work at it.

Anyway when I left the platelets were up to 48,000.  I have to go Monday for bloodwork again and will let you know how it turns out.

Time for me to get to bed.  I'm really tired, it's been a long day,

{{{{{HUGS}}}}}} and prayers,

Cindy

February 17

Gemzar

I had the Gemzar for the 2nd time on Friday and I'm feeling well.  I'm a little tired, well not exactly tired but I feel weak.  I'm not sleeping well so I am tired but only because of lack of sleep. But other than that things are going ok with the new chemo stuff.  I will get a nuelasta shot tomorrow because from my bloodwork on Friday before the Gemzar my bloodcounts were not what the Onc wants them to be.  The Nuelasta will bump up the white blood cell counts and that is awsome.  I will probably have more energy and not feel as weak as I do now.
Well just wanted to do a quick update.
Will update more later,
Cindy
 
Hugs to all my supporters and a
SPECIAL THANK YOU TO MY "FRIEND" IF YOU ARE READING THIS.  I REALLY APPRECIATE WHAT YOU HAVE DONE FOR ME.  YOU DONT KNOW HOW MUCH IT HELPS.  THANKS THANKS THANKS!!!!!
February 08

Chemo

I had the new chemo today.  So far I'm doing ok.  I'm tired but that is normal after chemo.  They didn't give me as much benydryl as normal cause I'm not on the epirubicin.  During the last treatments they gave me lots of benydryl and I would get the jumpy jitters.  I couldn't sit still, then I'd fall asleep.  I'm not sure if I will do the consult with KU my oncologist is in constant contact with the doctor there and he suggested the same drugs as she had chosen.  If these don't work there are other combinations of drugs I can take.
Well it's about sleepy time, 
I'll update later,
Cindy
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ocinny414

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I'm a single divorced mother of 3 teenagers. I enjoy spending time with friends and family and basically just having fun. Mylife has been turned upside down since the beginning of April with a diagnosis of breast cancer. I'm going to try and keep my blogs updated with my progress through all the trials and tribulations of the treatments. I AM AND WILL ALWAYS BE A SURVIVOR!!!!!

Welcome.  Please sign my guest book with your name so I know whose been here.   I noticed it doesn't tell me who just has the message.

Thanks,

CindyKS


  • View space
    June 27 7:13 AM
    Hi Cindy, I happened upon your MSM Space and wanted to stop in and say hi. My thoughts and prayers will be you. My son suffered with Non-Hoglins Lymphoma 10 years ago. He is doing well now, but it was a very trying time for all of us. I know what you and your family aew going through. Gob Bless you and yours........Loyce
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    (no name)
    April 30 2:14 PM
    Hey Cindy!  Thinking about you.  Liz Y. from May 07 chemo girls
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    (no name)
    November 12 7:35 PM
    Cinny, you're my hero.  Stay stong and know that you are in our thoughts and prayers.  Thanks for keeping us updated.  If you need anything at all, please give me a shout.. 
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